Just wanted to say thanks to everyone praying and thinking of my hubby the other day. It meant so much to us. Well turns out that he is actually healthier than he has been in 5 years when he was 16 and even then he was really REALLY good health wise. Also, his weight is staying stable at 130 lbs and he raised his lung function by 5% (yay!). I am so relieved to hear this around the holidays. We met a new doctor who is there temporarily I think but not sure. He has been getting a lot of new doctors lately because most are moving to the mainland and ones from the mainland are coming here. She seemed very caring and involved with us. She reassured us that we can in fact have kids of our own one day but as we knew it would have to be through IVF (guys with CF miss the Vas Deferens which makes them infertile not sterile). She said though when we are ready she will introduce us to doctors that work with them. I think that is really great of them. I am just glad I could actually hear it from a doctor that we can in fact have children because so many people including my mother in law has been constantly upsetting me by shoving it in my face that we can't have kids. She has had me in tears over that. I mean it is different to think that you might not even have that option then just to flat out chose not to have any, you know? So for a doctor to tell me we can is just the thing I needed to hear. Only thing is that they will all carry the gene for Cystic Fibrosis but unless I have a gene myself then they won't have CF.
They are all getting impatient there too about wanting me to get approved. They are so sure we will be approved and want to hear as soon as I hear back. I certainly hope that when we go back in the spring that I can bring them good news. They told me again the other day just how great I have been for him and his health. They don't think he would be near as healthy if I hadn't been in his life. Also, not to mention they expect me to come in there and I am involved with his care. I actually got to be involved with one of his doctors (he sees 6-7) while she made him do a brisk walk back and forth for 6 minutes to test his lungs like if he gets short of breath or not. He did great by the way. But anyway, I found it fun because it actually felt like I was doing something and volunteering. Made me excited to work. All I can say is that I am praying more than ever now that we get a positive decision on AIP. Our life is piecing together so nicely right now and I couldn't be happier expect I just would like this one last thing. Please CIC be generous to us and allow us to start our life finally.
Anyway, I am so sorry for lack of chart updates and posting quotes. Been extremely busy around the house lately. I am the only person that is decorating this 3 story house of ours here and let me tell you I am still not used to living in such a big house. I miss my small one story home. Lol. It is finally all decorated now and got all the shopping done for hubby now but broke as ever now. He deserves everything he gets though and I cannot wait to see his face because I got him everything he asked for and more. I still have some ornaments to put on the tree but that is it. We actually convinced the in laws to get a real tree this year and it was nice for me and hubby to reminisce of being younger with real trees because both of us haven't had them in years. I just really missed the smell (not the needles) and I wanted his younger brother to have one again. He loves it too. Are all of you busy too? Done with shopping? What are your plans for Christmas?
Sorry for rambling on just been neglecting this site more than I wanted to in the past few days and just want to say sorry for that. Hope to hear from all of you and you can update us on what you have been up to. Can't believe it is only 6 more days until Christmas. Why do I still feel so behind? Ugh...anyway just want to say hey and Happy Holidays to all of you!
By the way, can you guess what I wish I had for Christmas in my stocking? Lol