I've been reading through lots of old stuff, and I noticed that so far whenever CIC made a huge mistake, they have fixed it. It DOES take longer, and yes that DOES really suck. But, I think they'll resolve this and you won't be denied PR based off their mistake.
This is really stressful. Believe me, I'm right there with you. I'm delayed, I'm in the dark, and I have no idea when I expect an update. Try your absolute best to not let future-thinking get the best of you. We don't know what will happen, and not knowing is the worst, but not knowing doesn't mean that something bad is going to happen.
We also have to stop comparing ourselves to other people. When I first put my application in, I thought, okay about 10 months I might have an answer. Maybe a year. That's okay I'm ready. Then, I started comparing myself to other US Outlands. I was like, what the -- why are 'all' the other US outlands getting approved in like 4 months? See, I made two big mistakes with that thinking. First, it's not all of them. There's a ton of people not even on this site with information I don't have. There's also a lot of people on this site, you included, who also are waiting longer. And second, I started thinking 12 months was no longer "good enough" even though when I started out I thought 10-12 months would be okay and that I'd be fine to wait this long. Going around worrying about what is fair and not fair wasn't helping me. It just made me miserable and actually changed my initial thoughts on the matter completely.
So, I'm taking my own advice too here Charissey, and I'm NO "better" than you. I'm working on these same exact problems. But we can both do this. We have to stop comparing our situation to other peoples, because they're not us. We have to stop living in the future, or in the past, and we have to be as content as we CAN be right in this moment, right now. It's hard, it's really hard. It's like something monks spend a lifetime working on. But we have to try, because in both our situations that is literally the only thing we can possibly do. It's out of our hands. We can order the notes (I did, I hope you did.) We can reply to any questions they ask, give any documents they need... but it's out of our control and we have to accept this. So live right now. All we have is right now. None of us know what the future brings, not even the people who got their PR in 4 months.
I know with your medical condition, living in the present moment must suck. But, you didn't know this, but I have had a medical condition for the 8 years. Nothing that CIC needs to worry about because the only thing I can do for it is take some pills daily. But I want you to know this because you have to believe me when I say it's possible to be content in a present moment that you'd think kind of sucks. Once you accept your current situation (I am sick. I do not know when I'll immigrate. I do not know if they'll accept me. I have X, Y, Z.) then you are already in a better frame of mine to live in the moment. I am sick. This means I don't go out a lot. Maybe some people would be sad about this, but I accept I'm sick and I accept I can't do everything everyone else can. I make my happiness in the ways I can make my happiness. I read books, I get lost in worlds, play music, enjoy games, spend a lot of time with my husband. These are the things I can do, and I don't bother to think about the stuff I can't do because there's no point in that - it's just ruminating on sad things.
So what can you do to accept that this is currently out of your hands (until they communicate with you or until you get your notes and can communicate with them)? What can you do to find happiness that is within your reach while you wait and yes, even while you are sick? Don't think about all the things you can't do. Think about what you CAN do. That's the only way you'll be okay.
*internet hugs if that's okay*