Hello:
My 2 daughters have Glycogen Stoarage Diseae (GSD) type 6 since 2010 (in Texas USA). Doctors in Texas found that for the older one in 2010 and so they tested my younger one while she was born in 2011. GSD 6 patients must eat in every 3-4 your some rich carbohydrate food. Uncooked corn starch is the best (medicine) food for them. They cannot eat sucrose and fructose. So, their sugar level will go down if they are fasting (i.e.they have hypoglycemia due to GSD 6). But, as long as they eat proper food like I mentioned above they can have a normal life. By the way, they can eat foods line protein, vegetable, fruit (moderate amont).
We had medical test on November 13, 2017 and I had to be honest with the doctor in Edmonton (Canada) regarding our health. My wife and I passed the medical exam. But, our panel physician got information regarding our daughters and the doctor want see our daughters again for follow up on Dec 2, 2017. I talked to the nurse and she told me that the doctor wants to discuss about their low sugar level information/history.
We have consulting with specialist regarding our daughters since they arrived in Canada in 2015. Last check up they had was in January 2017. I do not think that it cost more than $1000.00 (doctor check up fee and lab test). So, I think it cross the excessive medical limit. This disease (GSD 6) is not contagious.
Do have to worry about the follow up?
I think the doctor wants to know about how the previous doctor knew about GSD 6. I think I have to tell them about Texas doctor right?
Do I have to take all the doctor's report/lab results (from Texas, USA) along with me for the follow up visit?
Are we in trouble? I think that we are ok since the disease GSD 6 is contagious and it does not cost that much money (but I am worried).
Please provide some input/suggestions to prepare for the visit.
Thanks
Siddhartha