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Help please - Received Procedural Fairness Letter for Crohn's Disease IBD

Neo101

Newbie
Nov 15, 2018
9
4
Hi everyone,

I was diagnosed with Crohn's disease last year in March and that was the first time I had symptoms, I've been under remission since and with no flair ups or deterioration of my condition. However, I'm on medication called Stelara which costs around 28k a year. But I have work health insurance that covers for 80% of this expense and the rest 20% is paid by a public patient assistance program (something I can pay out of my pocket if they need me to).

My current plan of action is:
1. Let them know that my work health insurance covers 80% of my medication costs.
2. Take the responsibility to pay for the entire cost of my medication because my yearly salary will allow me to do it
2. I'm doing well and my medical condition is in remission
3. Talk to my doctor and ask him to reduce the medication dose from every 8 weeks to every 10 weeks which will put the yearly cost to less than 20k (the current limit set out by the Temporary Puplic Policy).

I request advice on the above and comments on if you see a loophole. Also, I'm in dilemma whether I should hire an immigration lawyer at this point.
Has anyone been through the same thing and overcame it? I'v searched this forum for similar issues and I have reached out to people with similar experiences already.
Any advice is appreciated.
 
Last edited:

Neo101

Newbie
Nov 15, 2018
9
4
EDIT : The remaining 20% of my drug is not paid by a public funded program. It is being paid by a private patient assistance program. So, none of my drug cost is being funded by the government.
 

cigarmaster

Newbie
Jul 4, 2020
1
0
I received my CoPR last week. All the best.
Hey Neo101, I also have Crohn's disease and I've been taking Pentasa 1g 3 times daily for the past 10 years. I'm applying through CEC and I'm worried if the disease will become a reason for me for any delay and rejection for my PR process. The yearly medication cost is about 1800 before insurance and my work insurance covers 80% of it. Would you have any advice on my case? I have taken MRI test 2 years ago back home and they couldn't find any signs of inflammation so I was thinking about submitting the result translated and notarized. Would this be necessary? What's your insight on this? Any advice on defending my case when I fall into the similar situation as yours? Thank you for your help in advance!
 

Darshil shah

Member
Apr 9, 2019
13
0
Hey Neo101, I also have Crohn's disease and I've been taking Pentasa 1g 3 times daily for the past 10 years. I'm applying through CEC and I'm worried if the disease will become a reason for me for any delay and rejection for my PR process. The yearly medication cost is about 1800 before insurance and my work insurance covers 80% of it. Would you have any advice on my case? I have taken MRI test 2 years ago back home and they couldn't find any signs of inflammation so I was thinking about submitting the result translated and notarized. Would this be necessary? What's your insight on this? Any advice on defending my case when I fall into the similar situation as yours? Thank you for your help in advance!
Any update??
 

NMF

Newbie
Sep 3, 2023
1
0
Hi Neo101, I also have Crohn's disease and I've been taking Stelara. I received work permit and I would like to talk with someone who take Stelara in Canada.